Inflammatory bowel diseases often begins early in life.
Adolescents and young adults with inflammatory bowel diseases have to acquire behaviors that support self-care, effective healthcare decision-making, and self-advocacy to successfully transition from pediatric to adult health care.
Despite the importance of this critical time period, limited empirical study of factors associated with transition readiness in adolescents and young adults exists.
Dr Amitha Prasad Gumidyala and colleagues from Colorado, USA described transition readiness in a sample of adolescents and young adults with inflammatory bowel diseases and identify associated modifiable and nonmodifiable factors.
Seventy-five adolescents and young adults and their parents participated.
Adolescents and young adults and parents reported on demographics, patient-provider transition-related communication, and transition readiness.
Adolescents and young adults self-reported on disease self-efficacy.
Disease information was abstracted from the medical record.
Deficits in adolescents and young adults responsibility were found in knowledge of insurance coverage, scheduling appointments, and ordering medication refills.
The researchers found older adolescents and young adults age, higher adolescents and young adults disease-management self-efficacy, and increased patient-provider transition communication were each associated with higher overall transition readiness and adolescents and young adults responsibility scores.
|Deficits in adolescents responsibility were found in
knowledge of insurance coverage
|Inflammatory Bowel Diseases
The researchers revealed that older adolescents and young adults age and increased patient-provider transition-related communication were the most salient predictors of adolescents and young adults responsibility for disease management and overall transition readiness across parent and adolescents and young adults reports.
Dr Gumidyala's team concludes: "Adolescents and young adults with inflammatory bowel diseases show deficits in responsibility for their disease management that have the potential to affect their self-management skills."
"Findings suggest provider communication is particularly important in promoting transition readiness."
"Additionally, it may be beneficial to wait to transition patients until they are older to allow them more time to master skills necessary to responsibly manage their own healthcare."