The relationship between Crohn's disease patients' perceptions of overall disease course to severity measures based on current symptomatology has not been fully explored.
Dr Sunanda Kane and colleagues from Minnesota, USA characterized Crohn's disease patient perceptions of both overall disease course and current symptomatology based on an objective symptom scale.
The researchers explored the relationship between perceptions and current symptoms.
|Perceived current symptomatology was mild in 61%|
|Inflammatory Bowel Diseases|
The team screened patients by telephone.
The patients who met inclusion criteria were invited to complete a full, self-administered online survey.
The researchers identified 1205 respondents, who were predominantly female and Caucasian with a median age of 44 years.
Self-perceived overall disease course was described as mild in 16%, moderate in 50%, and severe in 34%.
The researchers found that these correlated poorly with objective measures of current symptomatology.
Perceived current symptomatology was mild in 61%, moderate in 29%, and severe in 10%.
Patients perceived their overall disease course as more severe than that reflected by current symptomatology.
The team found that among 61% who had mild disease based on 30-day symptoms, only 16% rated themselves as having a mild disease course overall.
Similar results among those in the moderate and severe overall disease categories indicated poor congruence between perceived overall disease course and measures of current disease symptomatology.
Dr Kane's team concluded, "Perceptions of overall disease severity may not correlate with disease activity measures based on current symptomatology."
"Patients rely on physicians to guide treatment choices."
"Therefore, a more complete appreciation of patients' disease perceptions that includes both overall disease course and current symptomatology may help inform treatment decisions, and could potentially improve patient care."