Health perceptions of adolescent transplant patients should be considered in providing appropriate healthcare.
Dr Estella Alonso and colleagues from Massachusetts quantified health-related quality of life in adolescent liver and kidney transplant patients.
The investigative team also compared caregiver ratings of their children's quantified health-related quality of life to adolescent self-reports.
The team then examined the relationship between quantified health-related quality of life, and disease-specific disability.
The team surveyed 51 adolescent liver, 26 kidney transplant recipients, and caregivers using questionnaires.
|Caretakers reported lower general health|
|American Journal of Transplantation|
The investigators calculated disease-specific disability scores for each patient.
The team reported that the response rate was over 70%.
Adolescent's psychological and physical health was similar to a healthy population, but general health poorer.
The investigators found that caretakers reported lower physical functioning, and general health.
However, the team noted that caretakers reported similar psychological health to a normative population.
The investigators found that all caregivers expressed negative emotional impact of their child's health, on themselves, and family activities.
Positive correlations were found between liver transplant recipients and caregivers, and their perceptions of behavior, mental health, and self-esteem.
The team observed positive correlations for kidney transplant patients and caregivers with physical function, bodily pain, and behavior.
Kidney transplant recipients showed negative correlations between physical functioning and general health.
The investigators noted overall disease-specific disability in kidney transplant recipients.
Dr Alonso's team commented, “Physical and psychological functioning of adolescent liver and kidney transplant patients is high.”
“Caregivers may serve as adequate proxies of psychological but not physical health.”