Dr Roger Barton and colleagues identified topics for research that are important to people with ulcerative colitis.
The research team conducted a qualitative study using focus groups and interviews.
The team reported that 40 people with ulcerative colitis participated.
The researchers found topics that could be grouped into 9 main categories.
The categories included finding the cause of colitis, cure of colitis, prevention of colitis, living with colitis, and type of treatment.
The team also assessed complications, control of particular symptoms, and information provision.
|Communicating with health professionals was a topic important to patients|
|European Journal of Gastroenterology & Hepatology|
Communicating with health professionals and methods of service delivery were identified as important research topics.
The team provided an initial framework to classify the research priorities of people with colitis.
Dr Barton's team concluded, “This study suggests the potential to utilize patients' views to generate research topics that are rarely researched and to involve them in setting the research agenda.”
“People with ulcerative colitis are able to identify many different areas of research that they feel are important to them.”
“This may help to ensure that research is relevant to patients' needs.”