Researchers from Canada and England assessed the effect of an educational intervention on health-related quality of life (HRQOL) in patients with inflammatory bowel disease (IBD).
A total of 59 consecutive ambulatory IBD patients (mean age, 40 years) were randomized to receive 4 IBD-specific educational booklets (n = 34) or usual care (n = 25).
Subjects completed 2 disease-specific HRQOL questionnaires at entry and after 2 weeks. These were the Inflammatory Bowel Disease Questionnaire (IBDQ) (range 1-poor to 7-excellent) and the Quality Index in Crohn's and Colitis (QuICC) (range 1-excellent to 5-poor).
The mean change in HRQOL scores at follow-up was compared between the education and control groups.
| Educational booklets worsened IBDQ scores.
| Inflammatory Bowel Diseases |
Of the patients, 6 did not complete the study.
It was discovered that mean IBDQ scores became significantly worse in the education group with a change of -0.17 compared with controls at +0.28.
This could be explained by worsened disease activity in the education group.
However, there was no significant change in the QuICC scores.
Education group patients who had not received prior educational material had improved mean IBDQ scores of +0.24. This was compared with education patients who had received educational material prior to this study, with a score change of -0.25.
Dr Mark R. Borgaonkar, of the Memorial University of Newfoundland, St. John's, Newfoundland, Canada, said on behalf of his colleagues, "The addition of educational booklets to IBD patients in a tertiary center does not improve, and may in fact worsen, short-term HRQOL."
"Education of newly diagnosed or less informed patients should be studied further," he concluded.