Although adequate disease-related knowledge is recognized as an important component of transition readiness, little empirical attention has been directed toward understanding the levels of disease knowledge of adolescents and young adults with inflammatory bowel diseases (IBDs) or factors associated with higher levels of knowledge.
Dr Rachel Greenley and colleagues described disease knowledge in a sample of adolescents and young adults with IBDs and examined individual, family, and patient–provider relationship factors associated with higher knowledge.
The team reported that 75 adolescents and young adults and their parents participated.
Adolescents and young adults and parents reported on demographics, parent autonomy granting behaviors, health care satisfaction, patient–provider transition-related communication, and disease knowledge. AYAs self-reported on disease self-efficacy.
|Over 85% of adolescents and young adults correctly identified their type of IBD|
|Inflammatory Bowel Diseases|
Disease information was abstracted from the medical record.
On average, the researchers found that adolescents and young adults answered 8 of 12 knowledge questions correctly.
The team observed that over 85% of adolescents and young adults correctly identified their type of IBD, number and type of IBD–related surgeries, and name of their current IBD medical provider.
In contrast, knowledge about frequency of medication refills, effects of drugs and alcohol on IBD, and number to call to schedule medical appointments was suboptimal.
The researchers found that older adolescents and young adults' age, greater AYA health care satisfaction, higher self-efficacy, and more frequent patient–provider transition-related communication were each associated with higher IBD-related knowledge.
Dr Greenley's team commented, "To promote disease knowledge, providers should foster adolescents and young adults' self-efficacy by encouraging age-appropriate involvement in IBD management, and make discussion of transition-related issues a priority during clinical appointments."
"Moreover, fostering collaborative and positive relationships with patients will improve satisfaction and may also enhance knowledge."