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Challenges in designing a national surveillance program for IBD in the United States

A study in February's issue of the Inflammatory Bowel Diseases reviews the history of U.S. government funding for surveillance programs in inflammatory bowel diseases.

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Dr Millie Long and colleagues reviewed the history of U.S. government funding for surveillance programs in inflammatory bowel diseases (IBD).

The research team provide current estimates of the incidence and prevalence of IBD in the United States, and enumerate a number of challenges faced by current and future IBD surveillance programs.

Lessons learned from other countries are summarized
Inflammatory Bowel Diseases

The researchers also offer a rationale for expanding the focus of IBD surveillance beyond counts of incidence and prevalence, and provide a greater understanding of the burden of IBD, disease etiology, and pathogenesis.

Lessons learned from other countries are summarized, in addition to potential resources that may be used to optimize a new form of IBD surveillance in the United States.

The team report a consensus recommendation on the goals and available resources for a new model for disease surveillance.

Dr Long and team comment, "This new model should focus on “surveillance of the burden of disease,” including natural history of disease, and outcomes and complications of the disease and/or treatments."

Inflamm Bowel Dis 2014: 20(2): 398-415
07 February 2014

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